09:09 GMT
Yesterday was yet another very wet
day! It was only light rain, and
by 3 or 4pm it was starting to
stop, and there was a few watery
spells of sunshine from a very low
in the sky sun. The evening was
reported as dry, but I didn't open
the curtains to find out. The ends
of the day were only 7° C, but the
afternoon did see 9° C.
This morning is a bit cool at
just 6° C, but there are some sunny
spells. The last of the sunny spells
will be around sunset, but then the
clouds will thicken and there will be
light rain that will continue into the
night. Once again the afternoon
temperature will be a semi mild, but
not warm enough to be comfortable, 9°
C. Tomorrow may start at 7° C,
but it will be a slightly colder day
with only 8° C forecast for the
afternoon. There will be scattered
showers. The last shower
may
be at 4pm. After that the clouds will
thin, and there could be just light
cloud for the rest of the day.
Yesterday was a far better day
than I imagined it might be. There
were some mild downsides like
travelling to and from Kings College
Hospital, but my assessment went
really well, and it is confirmed that
I will have my TAVI procedure on
Tuesday 27th January at the very early
time of 8am (or at least that is when
I have to report for it).
Today feels like a holiday
because I can rest for a few days
before all the hospital stuff starts
up again. I think the main
disappointment with yesterday was the
patient transport. The staff were very
helpful and friendly, but they were
doing a multiple pick up, and I was
the first on the "bus". It was quite a
long and convoluted route as we
stopped to pick up 2 or 3 other
patients.
The transport people were very
conservative with their time
estimates. I guess they have to be,
but it did mean I arrived an hour
early, and that meant a very long wait
in the corridor on some chairs by the
receptionist. The receptionist was
great. She was quite cranky, but very
friendly. After my hour wait,
when dreams of smoking a cigarette
surfaced again after months without
even thinking of them, I was finally
seem by staff nurse Lucy.
She was the same nurse who
looked after me at my first
assessment, and I knew her to be
cheerful and helpful. Later on she
went up a few more notches on my
"nurse ratings". The first bit of news
from her was that everything was ready
for me, but the computer had gone
down, and I would have to wait a
little longer. While waiting she
brought me a plastic glass of cold
water which I had asked for.
At that point the receptionist
said if I had asked her she would have
brought me "a brew". I had to explain
I didn't drink tea or coffee.
Eventually Lucy came and fetched me. I
expected to spend my time either
laying on a bed, or in an armchair,
but we went to a clinic room. My
assessment started with asking the
usual questions. I answered some in a
humorous way, and that got Lucy
smiling, and that broke the ice
completely.
The next thing was to take 5
blood samples, and Lucy didn't let me
down. I gave her 95% for an almost
painless procedure, and told her to
award herself a gold star - something
else which went down well. In some
ways that was the assessment over, but
Lucy spent a fair amount of time
explaining the TAVI procedure, and
about my recovery afterwards. We could
have skipped some of the procedure
details because it is only the last
bit, when the new valve is inserted
into the heart that is a lot different
to the two Angiograms I have had
before.
I recounted a funny detail from
my first Angiogram. In that one they
inserted the catheter through a hole
in my wrist, and it was threaded
through my arm, and over the shoulder
before going down towards the top of
the heart. I told her how I heard/felt
a distinct squeak as it went round the
bend, up and over my shoulder. I said
the cardiologist, controlling the
catheter didn't think it possible.
Lucy said to explain it again to the
cardiologist when I have the TAVI
procedure to see if he thinks it was
impossible too. In the TAVI procedure
they will actually enter in at the top
of my leg - they need the bigger
arteries to get the big heart valve
through.
When it came to my recovery
from the procedure I told Lucy that
even now when it is not hard to get
chest pains after a bit too much
exertion, I still like to push myself
to the limit, but without daring to
cross it. She was far more forgiving
than the cardiologists who refuse to
believe that I do my best to listen to
what my body is saying, and act
accordingly. Lucy said that if I
carried on that "pushing to the limit"
I would probably have a quicker
recovery, but... In the first weeks I
will have to take it a bit easy until
the new valve is proved to be in
correctly, and working well. After
that I should still not push past the
limit, but going up to it would be
very good for me.
I really liked Lucy, and, I
don't know, 30, 40, or more, maybe
less years ago, I could have
easily fallen in love with her. Of
course I realise it was just a silly
hospital fantasy. I don't know what
has changed, but on this episode of
hospitalisation I seem to find nearly
all the nurses to be really wonderful
- cheerful, smiling, always happy to
help, and then tender. It was sort of
sad to say goodbye to Lucy, but I had
a different treat coming up - Yousof
the mad wheelchair pusher.
He is just a porter, but unlike
some, he seems very enthusiastic about
his job. The corridors were a little
too busy yesterday to get up any
decent speeds, but at my last visit to
Kings he would almost get my
wheelchair fast enough to go around
bends on two wheels. It was very
invigorating ! The other good thing
about him is that he knows where he is
going - unlike the man from HATS
patient transport. I said I didn't
need a wheelchair at any time except
when going through the hospital to get
The Cardiac Catheter Lab where I had
to report to. I assumed he would know
exactly where to go because it is the
main start point for heart patients,
but I think he had less idea than I
did. On my previous visit, that HATS
man knew exactly where to go.
Yousof, who looks a bit like a
long haired rock star, was still a bit
faster than some porters I have
encountered. He took me down to the
Transport lounge where I waited quite
a long time to be called. When, after
maybe a boring hor had passed, I hear
my name called, and immediately stood
up and starting to walk towards the
lady (who I soon fond out was the
driver of the patient transport
ambulance). She remarked "oh, so you
can walk OK then, and don't need a
wheelchair". I said no, and said I
only asked for a wheelchair while in
hospital because the distances could
be longer that just going to the bus
outside, but mainly because I hoped it
was the easiest way to get to where I
wanted to go - which was not true when
I arrived there (but we did get there
without going too wrong).
When I got to the bus I found
there was one man on a stretcher who
had to be dropped off at Lewisham
Hospital, and we were soon joined by a
woman in a wheelchair. With all
three of us aboard (plus the driver
and the carer/porter) we set off on
another very variable route - some of
which was very unfamiliar to me, and
even when I did recognise where we
were, we soon took a different route
to what I would take. Our first
stop was to Ladywell where the lady in
the wheelchair had to be carried up a
couple of flights of stairs. We sat on
a single or possibly double yellow
line for a fair time while she was
taken up to her flat. Despite being a
private ambulance, we still had some
of the privileges of an emergency
ambulance (although you do hear
stories of some zealous traffic
wardens ticketing fire engines and
ambulance).
The stop at Lewisham Hospital
was quite tedious. It took the driver
and the carer a long time to get the
man on the stretcher (on wheels) to
his ward which could have been 3 or
more stories up in the same building I
was in. Meanwhile I sat on my own in
the ambulance while a fight over
parking spaces was almost starting.
Just to make everything worse a big
car pulled up next to the ambulance
and completely blocked the access
road. it was all terribly chaotic.
When the driver and carer
returned I mentioned that when I was
discharged from Lewisham on the 9th
January, I walked home from that
there, and that if I was fit I could
almost have walked home in the time it
took to deliver the patient to his
ward. However, in my current state I
was happy to wait to be delivered home
on 4 wheels.
Once I we arrived almost
outside my house I found my legs were
almost going to sleep after sitting
down for so long. That, and the
thought I was being watched to see
that I was safe to cross the road, and
let myself into my house made me very
self conscious, and in the desperation
to do the walk perfectly I almost
faltered, but I don't think my very
slight wobble was noticed, and in a
few seconds I was indoors, and had
closed the door on the rest of the
day.
My next big thing was to walk
upstairs for a pee. The day before I
was noticing a slight bit of pressure
on my chest just from going up the
stairs, but oddly enough I seemed to
be find yesterday. I had my pee, and
came down again to go into the
kitchen. I had had no breakfast, and I
wasn't offered the usual sandwich or
something - maybe because I spent no
time in the ward. I felt starving when
I got home.
I thought I had over done it
when I had a dinner sized "brunch" for
a very late lunch. I had a toasted
Paninni roll with cheese and the last
of the thinly sliced beef. I followed
that with a simple to prepare double
portion of instant noodles. As I
implied, it seemed a very big meal,
and I did feel very full for an hour
or two, but then came the call of
dinner. Prior to that call I ate my
"brunch" and read some mail - both
postal and email. Then I had a lie
down, and snooze.
I woke up possibly an hour
later, and it was time to watch some
TV and that is when thoughts of dinner
starting percolating through my head.
I had a rummage in the freezer, and
pulled out a frozen "all day
breakfast". If I knew how convoluted
cooking instructions were, and what it
actually consisted of, I would never
had bought it. That must have been a
good few years ago, but last night
seemed time to bite the bullet and try
it. Half had to be heated in the oven,
and so it was not a quick meal.
Having done all the
cooking I tried it. The baked beans
were fabulous, the sausage was
mediocre, the bacon tasted sooty
rather than smoky, the scrambled egg
was weird, and the hash browns were
like like has browns - rather alien
and probably better suited for
American diners to eat in some seedy
bar or wherever Americans eat. In
future I will stick to "all day
breakfast sandwiches". They are know
no be desperately unhealthy in many
ways, but still very tasty.
While watching my usual evening
TV I had a yearning for some booze. I
think I had three big tots of rum.
Maybe it was lack of practice, or
maybe it was one of the (very mild)
dizzy spells they keep asking if I
suffer from (as a result of my faulty
heart valve), but I definitely felt
slightly wobbly when I got up and went
into the spare room to look out the
window to see what the night sky
looked like. The thing is that I
thought it was just the booze, and so
of no problem at all.
I did feel very tired before I
had watched all my usual TV, and I
went to bed at around 10pm instead of
the 11pm I sometimes wait until. I
thought it would be great to be in
bed, but I felt a bit uncomfortable.
There seemed lumps in my bed that
weren't there the previous night, and
the temperature was all wrong. It was
too hot under the duvet and too cold
without it.
That wasn't the biggest
problem. The big problem was that my
brain would not shut up. I kept
thinking of the future. It wasn't any
negative thoughts, like worrying about
my TAVI "procedure", but the positive
things after that was done. There was
some negativity when I thought of how
every spring, after not doing much
walking in the winter, how it would
take a lot of time to get my legs back
in good working order. After an even
long period when walking has been
difficult, it is going to take a lot
of "grit" to force myself to get my
legs, and maybe other bits of me, back
into condition, but once done I should
be able get some long walks down this
coming summer.
Although I seemed to spend a
lot of time not asleep (although it is
possible that what I thought was my
awake imagination at work, some could
have been dreams) I did not seem to
get up to pee all that much last
night. I thought that doomed me to not
losing any weight, and double so after
all I had eaten, but somehow I was
mistaken. This morning I weighed 1.1kg
less then yesterday morning, and that
was before the two large poos I have
done this morning.
I mentioned yesterday that I
felt a bit constipated, and how i
expected it to ruin my day, well
nothing happened all day, and that
nothing often included not feeling
constipated for most of the -which was
handy while I was having my
assessment. Last night, after still
not going, and yet not really
uncomfortable, I took two Senna
tablets.
They seemed to work, but only
after passing the hard lump of my
previous constipation. On my second
visit it was easy to pass a lot more,
and it was still fairly firm instead
of runny. It is a shame those two
visits to the toilet were not done
before I weighed myself. Also to my
surprise, my blood glucose was pretty
good this morning. It may not have
been as god sas some of the better
days, but an average of all three
meters was 6.63mmol/l, and that is not
a lot bigger than some of the best,
but it is better than more than half
the readings this month.
This morning my blood pressure
is possibly a int bit too low, but I
still think that 108/44 is pretty good
for a man in my state. I still can't
quite work out how I actually feel
this morning. I think I woke up
feeling that even more sleep would
have been good for me, and also that
my chest felt very slightly tight.
Since then I seem to have been feeling
generally OK, and momentarily really
good once I knew I was no longer
constipated (but sadly such wonders
are very short lived).
As I said at the top of this
somewhere, it feels like I am on
holiday for a couple of days. I can
relax as much as I want. The only
brief interruption was when I tried to
contact "Patient Transport" to arrange
my transport to hospital for my TAVI
procedure on Tuesday 27th. It seems
they do not work, or at least their
office is only open Monday to Friday.
I will have to phone them on Monday,
and that seems short notice when I
need to get to Kings at 8am on the
27th. There is nothing I can do about
it now, and so I will relax.
If I didn't think it would hurt
I might have tried a shopping trip
today. Maybe I might try a very short
walk today, or maybe I will just be
very lazy. I think that might be my
plan for today, but maybe tomorrow I
might try something more. Either today
or tomorrow I may do a bit more
laundry. I think I reported I had
cleared the backlog recent, but maybe
"mostly cleared the backlog" would
have been more accurate. I know my
washing bag is definitely not empty. I
think I am more likely to do that
instead of getting the hover out -
laundry always wins out even when I
feeling fighting fit !
2998 words
today.